Examining the impact of COVID-19 on acute episodes of care and health care utilization among persons with spinal cord injury/dysfunction (SCI/D)
Principal Investigators: Dr. Sara Guilcher,
Co-Investigators: Dr.Arrani Senthinathan, Dr. Mina Tadrous, Mr. Swaleh Hussain, Dr. B. Catharine Craven, Dr. Susan B. Jaglal, Dr. Rahim Moineddin, John Shepherd, Dr. Karen Tu
The purpose of this study is to examine changes in health care utilization and delivery in individuals with spinal cord injury/dysfunction (SCI/D) living in the community during the COVID-19 pandemic. The COVID-19 pandemic has caused significant unplanned and unprecedented changes to healthcare utilization and delivery across the world. Currently, the effects of the COVID-19 pandemic on healthcare in individuals with SCI/D are unknown, including changes in the number of virtual and/or in-person physician, primary care and specialist visits, as well as number of emergency room visits and hospital admissions.
Funder: Canadian Institutes for Health Research
Post-Doctoral Fellow: Dr. Arrani Senthinathan
Implementation considerations for the use of patient-reported experience measures for medications (PREM-Rx) in primary healthcare practice in Ontario, Canada: A mixed methods needs assessment
Principal Investigators: Dr. Sara Guilcher, Dr. Aisha Kamilah Lofters
Co-Investigators: Dr. Stephanie Cimino, Dr. Lisa Dolovich, Dr. Sander Hitzig, Dr. Crystal MacKay, Dr. James Milligan, Dr. Lisa McCarthy, Dr. Diana Zidarov
The purpose of this three-phase study is to identify key factors influencing the use of patient-reported experience measures for medications (PREM-Rx) among healthcare providers and persons taking medications in Ontario, Canada. In Phase 1, we will conduct focus groups and interviews to identify barriers and facilitators to the use of PREM-Rx in primary and community care. In Phase 2, we will conduct an online survey to quantify the barriers and enablers to the use of PREM-Rx in routine practice. In Phase 3, we will combine our data to provide an in-depth understanding of how to best support the integration of PREM-Rx into routine care moving forward. Our research will support healthcare providers by understanding what matters to people about their medications in everyday life. Measuring what matters to patients will help improve medication-related quality of care and health service delivery in Ontario.
Funder: New Initiatives and Innovation Award
PhD Student: Lauren Cadel
Research Staff: Dr. Rasha El-Kotob, Dr. Jacob Crenshaw
Work Study Student: Monica Elzawy
Developing a Patient Reported Outcome Measure on Medication-related Quality of Life for Persons with Mobility Limitations
Principal Investigators: Dr. Sara Guilcher, Dr. Sander Hitzig, Dr. Diana Zidarov
Co-Investigators: Ms. Anita Kaiser, Dr. Lisa McCarthy, Dr. Aisha Lofters, Dr. James Milligan, Dr. Colleen O’Connell, Dr. Crystal MacKay, Ms. Stephanie Cimino, Ms. Lauren Cadel
The purpose of this research study is to develop a patient-reported outcome measure (PROM) that assesses medication-related quality of life (QoL) for persons with mobility limitations (PROM-mQoL). We will be conducting item generation as the first step in developing the PROM. In order to get a better understanding of what matters to people with mobility limitations about their medications in everyday life, we will conduct concept mapping sessions (brainstorming, sorting and rating and mapping) and qualitative interviews. These sessions and interviews will help guide potential items for the PROM.
Funder: Canadian Institutes for Health Research
PhD Student: Lauren Cadel
Previous Research Staff: Amanda Everall
DevelOPment and evaluaTion of a toolkIt to iMprove medicAtion self-management for persons with spinaL cord injury
Principal Investigator: Dr. Sara Guilcher
Co-Investigators: Dr. Sander Hitzig, Dr. Shoshana Hahn-Goldberg, Dr. Chester Ho, Dr. Aisha Lofters, Dr. Lisa McCarthy, Dr. Tanya Packer, Dr. Tejal Patel, Ms. Stephanie Cimino
The purpose of this research study is to co-create a toolkit intervention to support persons with spinal cord injury (SCI) with medication self-management. Over the course of this project, we will design, test, and evaluate the toolkit intervention. In the first phase of the project, we will use concept mapping to explore what would help persons with SCI manage their medications in their everyday life and co-create a preliminary toolkit. In the second phase, we will conduct interviews to gain insights on the toolkit, specific to the language used, comprehensibility of the content, the delivery of the information, and the overall design. In the final phase, we will implement and evaluate the toolkit.
Funder: Craig H. Neilsen Foundation
PhD Student: Lauren Cadel
Research Staff: Dr. Rasha El-Kotob
Work Study Student: Hannah Zuta
Optimizing care journeys for adults with hip fractures and complexity: A mixed-methods case study
Co-Principal Investigators: Dr. Sara Guilcher, Dr. Kerry Kuluski
Co-Investigator: Dr. Jeremiah Hwee
The purpose of this research study is to gain an in-depth understanding of care transitions for older adults with hip fractures across urban and rural settings. Over the course of this project, we will examine care journeys and identify opportunities to improve transitions in care. In the first phase, we will conduct interviews with patients, caregivers, healthcare providers, and decision-makers to explore experiences and challenges associated with care transitions. In the second phase, we will analyze quantitative health administrative data to gain a comprehensive understanding of care pathways across the continuum. In the final phase, we will summarize findings and engage stakeholders, including patients, caregivers, providers, managers, and decision-makers, to co-develop strategies for improving care transitions for individuals with hip fractures within Ontario and across Canada.
Funder: Canadian Institutes for Health Research
PhD Students: Lauren Cadel, Dr. Laleh Rashidian
Post-Doctoral Fellow: Dr. Anum Ali
Work Study Student: Laraib Abrar
Co-Principal Investigators: Dr. Sara Guilcher, Dr. Kerry Kuluski
Co-Investigator: Dr. Jeremiah Hwee
The purpose of this research study is to gain an in-depth understanding of care transitions for older adults with hip fractures across urban and rural settings. Over the course of this project, we will examine care journeys and identify opportunities to improve transitions in care. In the first phase, we will conduct interviews with patients, caregivers, healthcare providers, and decision-makers to explore experiences and challenges associated with care transitions. In the second phase, we will analyze quantitative health administrative data to gain a comprehensive understanding of care pathways across the continuum. In the final phase, we will summarize findings and engage stakeholders, including patients, caregivers, providers, managers, and decision-makers, to co-develop strategies for improving care transitions for individuals with hip fractures within Ontario and across Canada.
Funder: Canadian Institutes for Health Research
PhD Students: Lauren Cadel, Dr. Laleh Rashidian
Post-Doctoral Fellow: Dr. Anum Ali
Work Study Student: Laraib Abrar
Examining recommendations to identify race in health administrative databases: A rapid scoping review
Principal Investigator: Dr. Sara Guilcher
Co-Investigators: Dr. Arrani Senthinathan, Dr. Laura van Staalduinen
The purpose of this study is to examine recommendations for identifying race in health administrative databases. As a social determinant of health, race significantly impacts patients' quality of care, health equity, and outcomes. Historically, race has been inconsistently recorded in healthcare systems which undermines the quality and reliability of race data that complicates efforts to analyze health disparities. Thus, this scoping review will serve as an important step to address gaps in the current literature, enhance reporting race data, and overall promote equity in global health.
Undergraduate Student: Megan Chow
Research Staff: Dr. Rasha El-Kotob
Work Study Student: Hannah Zuta
Examining recommendations to identify gender in health administrative databases: A rapid scoping review
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Principal Investigator: Dr. Sara Guilcher Co-Investigators: Dr. Arrani Senthinathan, Dr. Giselle Valarezo The purpose of this study is to provide an overview of recommendations available in the literature for gender identification in health administrative databases (HADs). Gender is a well-defined social determinant of health, yet there are currently no widely accepted standardized approaches for including this equity stratifier in HADs and health service research. By determining recommendations for gender identification in HADs, this rapid scoping review aims to act as an important step toward the development of gender-responsive interventions and promotion of global health equity. Undergraduate Student: Amy Cho Research Staff: Dr. Rasha El-Kotob Work Study Student: Laraib Abrar |
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